WASHINGTON, Feb. 26 /PRNewswire-USNewswire/ — The Lupus Foundation of America will hold its annual Advocacy Day to elevate lupus on the nation’s healthcare agenda on Thursday, March 1. Lupus affects 1.5 to 2 million Americans, mostly women, with the highest prevalence among women of color.
It has been more than 40 years since the FDA last approved a new treatment for lupus. Current therapies include the off-label use of high doses of steroids, anti-malarials, and chemotherapy drugs which can cause other health problems that may be worse than the primary disease. People with lupus want safer and more effective treatments.
350 individuals with lupus, family members, clinicians and medical researchers from throughout the U.S.
When & Where:
Wednesday, February 28 — Westin Arlington Gateway Hotel, 801 North
Glebe Road, Arlington, VA
2:00 p.m. – 3:30 p.m.
Francis Ashe-Goins, R.N., M.P.H., Deputy Director and Director of the Division of Policy and Program Development, Office on Women’s Health, U.S.
Department of Health and Human Services — “Update on OWH’s Lupus Awareness Projects” Gary Gilkeson, M.D., Medical University of South Carolina, Charleston, South Carolina; Chair, LFA Medical-Scientific Advisory Council — “Research Priorities for Lupus — Why Funding is Needed Now” Sam Lim, M.D., M.P.H., Assistant Professor of Medicine, Emory University, Atlanta, Georgia; Principal Investigator, National Lupus Patient Registry (NLPR) — “Update on Data Collection for the NLPR — What We Have Learned to Date” Michelle Petri, M.D., M.P.H., Professor, Johns Hopkins Medical Institutions; Co-Director, Hopkins Lupus Pregnancy Center — “Overview of Lupus Research Funded by NIH”
5:00 p.m. to 8:30 p.m.
Congressman James Clyburn (SC-6); House Majority Whip
Congressman Jim Moran (VA-8)
Vivian Pinn, M.D., Associate Director for Research on Women’s Health;
Director, Office of Research on Women’s Health, National Institutes of
Health — “Update on Women’s Health Research at NIH”
Thursday, March 1, 2007 — Room G 50, Dirksen Senate Office Building
12:00 p.m. to 2:00 pm
Richard Burt, M.D., Associate Professor and Chief, Division of
Immunotherapy for Autoimmune Diseases, Northwestern University, Chicago,
Illinois — “Update on Stem Cell Transplantation as a Therapy for Severe Lupus”
Congressman Patrick Kennedy (RI)
Other members of Congress expected to deliver brief remarks
CONTACT: Duane Peters of the Lupus Foundation of America,
SOURCE Lupus Foundation of America